Telling the Children.

 

We told the boys. A week before their tenth birthday.

We’d decided we weren’t going to tell them anything until nearer the time. Not sure what the fuck “the time” is, but death, I suppose.

We’d certainly wanted to wait until we’d seen the oncologist, in case some whizz-bang trial had just appeared which would change everything. I can’t begin to tell you how uncomfortable it feels to ask someone to absolutely guarantee your husband will die, but it was important to us that we weren’t about to break the boys’ hearts, only to have to try to piece them together again a few months down the line.

That day, we met with him for the first time since the terminal diagnosis, and we knew it was serious when he did that sort of closed-mouth half-smile thing that people do when they need to rip someone’s heart to shreds, but in the most sympathetic way.

Still, the oncologist (let’s call him Dr Death) was pretty certain there would be no sudden miracle cure appearing on the horizon in time for us, despite the news in that day’s papers (and not just the Daily Mail) that immunotherapy was imminent and showing promising results. It isn’t that simple, apparently.

According to him (and I do trust that he knows these things,) children fare far better when they’re told the truth from the start. We’ve always told our children the truth about everything, provided it’s in age-appropriate terms for them to understand, and hiding the truth about their daddy’s health was beginning to eat away at us. We could barely look at them in case we gave something away. So, with the added assurance that no, there really was no way that my hubby would ever recover from this, and frankly, if by some miracle he does survive, the children are not going to be upset about that, we decided to sit them down and tell them the truth.

We’ll make ourselves a nice cup of tea, some Vimto for the boys with extra ice, put out a few biscuits on to a plate… yes, of course you can finish your game on the xBox, but then just pop in here onto the sofa and we’ll cuddle you and tell you your Daddy’s cancer can’t be cured. The doctors have worked so hard, but it’s gone too far and they can’t reach the bits they need to. Yes, my darling, he will die. We don’t know how long… a year, maybe? Maybe more, maybe less. We’re so, so sorry. I know. Come here.

They cried. My God, they cried. One went very quiet and just wanted to hold his Daddy. The other went outside the room, punched the wall and screamed. He wanted to know what he had done to deserve it. We held them both tight and made all the right noises. We loved them so much – more than we ever have before.

Then, our older twin wandered off and returned with his iPad. Hubby and I looked at each other and wondered which cure for cancer he’d looked up on the internet, and wondered how we might gently tell him that we trusted in the people in charge of his Daddy’s care, and ask him to believe we were all doing the best we could to keep him alive, and please not to tie himself in knots trying to find a cure that doesn’t exist.

“What’s this, my darling?” I enquired, gently.

Through his tears, “it’s Match.com” he replied. “We’re going to have to find you a new husband.”

At this moment. I couldn’t be any further from wanting to be someone else’s wife if I tried. Bring on the hair loss, the sickness, the lethargy and the misery. Throw all the chemo at him that he can handle. There’s nobody else I want to be their Daddy, but their Daddy.

Love Fanny x

daddy fundraiser

The Island of Denial.

Well, it’s been a fucking funny year, and no mistake. Oh – wait, no. It’s been shite.

The cancer we’ve been dealing with was always going to be a tricky one to manage – T3N2M0 adenocarcinoma oesophageal cancer, to be precise, which – just a year ago, would have been to me a random selection of consonants and vowels with no real meaning. Over the twelve months since my last blog, we’ve learned that they mean quite a lot – and if you boil it down to single facts and figures, the only definition you need is that there’s a 16% chance of being alive in two years following diagnosis.

Righto.

After three months’ chemo, some major surgery (an oesophagogastrectomy, should you wish to google it – though I wouldn’t do it over dinner,) followed by a week in intensive care, and three more months’ chemo, we were so looking forward to a clear scan. My hubby was doing SO well – he’d dealt with everything with remarkable ease and good humour. He was feeling better, getting out and about, and most of all spending lots of lovely quality time with our fabulous boys who’d had a not-so-fabulous year of anger, upset, tears and stress, and who were both coming out of this dark period and being – quite frankly – wonderful.

He feels well. Six weeks after having his chemo stopped early because his cells were so battered, he’s just walked 10K for a cancer charity, and raised over £2000. He’s on the up, and so are we – looking forward to a future which, a year ago, seemed so uncertain.

So, after a scan to check the cancer was all gone, and our fingers poised to send a mass text to our nearest and dearest to tell them the good news… being told it was back – and this time incurable – was, just, WHAT? Wait.

I don’t know how it must feel to be him. To be told you have a year – maybe more, maybe less. Who knows? To wake every day from a fitful sleep to feel the Grim Reaper on your shoulder, who just won’t fuck off. To look at his wonderful boys – nearly ten, and with such spirit, such spark, and a promising future ahead for each of them – and realise he may not even see them through primary school. To know he might have just seen his last spring.

I can’t imagine. I wish I could feel something of what he’s feeling. Last year, after his diagnosis, I spent days – maybe weeks, maybe months – walking around in a cheerful daze, unable to access whatever my true feelings were. Making lists in my head (such as the ones in the last blog I wrote a year ago) which were irrelevant, distracting and irritating. I cried… oh, bucketloads. But not straight away.

“AutoFanny” has switched right back on since Tuesday, when we heard the news which would change our lives forever, and all I can do is pretend it isn’t happening. For now, the boys only know that the cancer hasn’t completely gone away, and that Daddy is going to have more chemo. You never know – miracles DO happen, so why write him off now? And why put such a cloud over what could be a wonderful few months or – hell – a few years? Even so, they’re in bits, so are the people around us, and my hubby is veering from deeply weepy to taking the piss out of himself. But taking the piss is pretty much ALL I can do. I’ve only cried once, and that was when we heard the news, while he held it together in that shitty little side room with the stupid fucking flowery wallpaper and held MY hand. Since then, I’ve simply cracked jokes.

“Oh, look, darling. That book’s called 1001 Albums To Listen To Before You Die. Better get cracking, eh?”

He laughed. Well, praise the Lord for that.

All we’ve ever done for the last fourteen years is laugh. Here’s to more laughter… for as long as we can find humour in, well, everything. Even so, when the rest of the world is crying and you’re taking the piss out of the situation on your own little island of denial, it’s a very lonely place to be.

In truth, all I want to do is scream, but I can’t even begin to know how.

Love Fanny x

Every Cloud.

  • I really ought to make sure I’ve got his recipe for those legendary roast potatoes.
  • The office is so full of unnecessary stuff… perhaps if I move his desk out of the way, the boys will have more room for their computer. Their desk is a bit hemmed in. We might even get a sofa to go there instead, come to think of it. That would look nice.
  • I’d better get him to leave me an instruction manual about how to use all the office equipment, too, and what our pricing structures really are. When I’ve got those, I’ll feel more comfortable with everything.
  • I won’t have to listen to him over-explaining things any more, which drives me mad anyway. Why use one word when fifty eight will do?
  • No more wet towels on the bed, thank God. And don’t get me started on the chaos he leaves after using the bathroom.
  • Finally, I can sort the laundry properly before each wash, and know it’s being done right.
  • I’ll have to do the ironing myself from now on, which is a drag. At least I won’t have all his shirts with complicated pocket arrangements to think about, though.
  • I won’t ever leave the kitchen in as much of a tip as he does when he cooks.
  • The garage is full of stuff which will be sorted “one day.” I can’t wait to tidy up, fill the car and get to the tip.
  • I wonder what I should tell our clients when they ask to speak to him. I hope they don’t stop employing me because they’re too embarrassed to find out if he’s dead yet. I still need to make a living.
  • He’s always so grumpy at airports. At least I won’t have to put up with his bad travelling attitude any more.
  • I’m never going to have to see him in those bloody awful slippers which – though he knows how much I hate them and how ridiculous they make him look – he still continues to wear.
  • Come to think of it, that fucking dressing gown will be the first thing to go in the bin, as well.
  • I’m so angry that he thinks this is a suitable time to get ill. It isn’t. Our little family is a team, and I’m fucked if he thinks we can play as well with a quarter down. We can’t.

I don’t want this to be happening. I don’t even recognise these feelings as my own. These are all the ridiculous thoughts that have gone through my mind since I found out that the man I share my life and my children with has advanced cancer.

Every time I’ve turned around for the past 12 years of my life, he’s been right there beside me. He’s driven me mad, he’s frustrated me, he’s counselled me, he’s made me laugh, he’s made me cry, he’s made love to me, he’s pissed me off royally, he’s supported me, he’s fathered the two most amazing little boys in the history of the world, he’s helped us to become leaders in our field of work, he’s made lots of friends and very few enemies, he’s made me squeal with laughter and cry in frustration. He’s stretched me to breaking point and he’s shown me happiness that I never knew could be found. He’s not perfect, but he’s my husband, and I love him. I’m not sure how we can even think about living without him. Our journey has just moved in a new and completely unexpected direction, and I don’t mind admitting that we’re all totally fucking petrified.

Love Fanny x